Just in case you subscribed to my blog to keep up with this crazy disease, let me share a bit.
Tonight I’m writing because I’m miserable. I need to vent, and I hate to talk about it to folks around me. I know they care, but they can’t do anything about it, so why do they want to hear.
At the beginning of July I had managed to work myself down to 10 mg of Prednisone once every other day. I was so excited! I thought maybe it was due to being in the sun more often. Those first two weeks of July were so nice I was in the pool almost every day. Some told me it was probably the exercise, but I don’t really swim. I do get a little workout when we play pool volleyball, but other than that it’s mostly floating around.
The beginning of July was also my Muscle Biopsy, used to make sure I don’t have close sister to Polymyalgia Rheumatica, Polymyositis. The biopsy was every bit as wonderful as it sounds; however, I was able to walk normal by the next day. After they stuck me with an awl seven times and removed seven pieces of deep thigh muscle, the test came back negative, I have no muscle deterioration, so it is Poymyalgia Rheumatica.
As July moved on, the Summer got rainier, so I can’t get out as much. By the end of July I’m back to 10 mg every day. But now, mid-August, that’s not kicking it. I just took the second 10 mg for this 24 hours. It should kick in by midnight so I start to feel better, but right now my eyes hurt, my hips hurt, my shoulders ache and I feel miserable. My throat is sore too, but I can’t tell if that’s due to the disease or I’m getting some kind of throaty thing . . . so I upped the Vitamin C just in case.
I hate to complain. I know so many folks have it worse, and the pain I have tonight is still NOTHING compared to what it was like when I was first diagnosed, but it’s hard for me to concentrate and create. I just don’t feel like myself.
I’ve spent a lot of time in prayer, and I will always ask for a healing . . . not because I expect God to do whatever I ask, but because I know He is able . . . I know for a fact my Savior can. So why wouldn’t I ask. If He says, “No,” I’ll wait to find out how He’s going to make this into a Romans 8:28 thing. Until then your prayers are appreciated, and I’m just grateful there is a med I can take to make the pain go away!