Polymyalgia Rheumatica – I’d never heard of it before
Posted On April 4, 2018
Yesterday I got confirmation that the pain I had for about a month has a name, Polymyalgia Rheumatica. It’s an auto-immune disease. Which basically means no one can figure out why your body turned on you all of a sudden.
Mine started February 21, 2018 . . . or perhaps a few years ago, and that’s the day it got real, but I’ll explain that more later.
I woke up that Wednesday sore. I’d bowled on Sunday and moved furniture on Monday and Tuesday, so there was a chance it was just overused muscles. I ignored it and didn’t worry about it too much. But then my right trapezius (shoulder) started feeling as though someone was ripping it in two. Ibuprofen didn’t touch it.
So finally on March 17 I went to the doctor about it. She gave me some pain meds and muscle relaxers, but it just kept getting worse. By March 24 I couldn’t climb stairs and getting in my hubby’s 4×4 truck was next to impossible. So, back to the doctor the next Monday.
I can’t begin to tell you how bad the pain was. From my neck to my knees every muscle ached, and just got progressively worse. I got weaker and weaker. It was hard to get out of a chair, and getting in and out of the vehicle was torturous. During the whole ordeal I was painting and decorating, getting our new church building ready for Easter. So it didn’t stop me, but it did slow me down and it was excruciating (although not as bad as the Sciatica pain I had a couple of years ago).
My maternal grandmother died of Lupus and grandpa of Colagen disease, both auto-immune diseases. Five others in my family have Rheumatoid Arthritis. So, I was starting to get a bit concerned. And after blood tests and two days on Prednisone, the diagnosis was confirmed. I’ve joined the auto immune club in the family.
I couldn’t believe how fast the Prednisone worked. In less than 24 hours I went from not being able to roll over in bed to being up early and feeling great! However, enough of my family has been on this miracle drug to know there are a lot of reasons NOT to stay on it. I got a bit worried Saturday because I forgot to take it in the morning, and by afternoon, I could feel the symptoms coming back.
I’m not sure where this will go, but I do know there isn’t much information about it, so I thought I’d chronicle my journey. So stop back often, leave a question or two and journey with me.