Tag Archives: Autoimmune

More about the Polymyalgia Rheumatica

So, after really thinking about this “condition,” I’m starting to wonder if it started years ago. The TIA I had in 2016 could have triggered it I suppose, although the things that are making me wonder about when it started didn’t appear till 2013.

That was the year I started gaining weight. My doctor attributed it to my age and slowing metabolism, but I started gaining a pound a month. I finally started eating more protein and complex carbs and got it under control, but I still haven’t lost those pesky pounds.

It was the next Summer I noticed my hips started hurting.  I didn’t even tell the docs about this one! I assumed it was because I’m over 50. They didn’t really hurt that bad. It was a little difficult to put pants on some days, but never horrible. I remember the date because in 2013 I walked all night for our Relay for Life Team, but that year I couldn’t.  I had to take a lot of breaks.

It was the next year I noticed my hands didn’t work the way I wanted them to from time to time.  It was most evident in my handwriting. I really like the way I write, and I just didn’t seem to have the control I’d always had. I had a little bit of numbness now and then, but no pain really. So, again, I never told a doctor.

Right around Easter of 2016 I had a horrific bout with what seemed to be sciatica. It was excruciating! I went to a chiropractor, had some x-rays taken and got some exercises from a Physical Therapist. This seriously may have just been a problem with my sciatic nerve but now I have to wonder.

It was that same year that my stomach felt funny a lot and my shoulders began to hurt a bit. Neither was anything I considered to be major. I attributed them to my age. But the shoulders especially may have been the beginning of all this.

By the end of the year, I felt exhausted all of the time. My brain was in a fog a lot. I even told my neurologist and PCP. Both thought I needed to exercise more (and I probably do)

The most disconcerting thing is that I got till I have problems singing. My throat feels tight and weak all the time. The ENT gave me Flonase and said some of it was caused by Acid Reflux, but even after taking care of those two problems, I can’t count on my voice to be strong.

Finally, last fall, I remember thinking if I don’t figure out a way to exercise my eyelids, I’m going to have to have surgery to keep them open. I attributed it to being tired all the time, but now I have to wonder, are my eyelids heavy because I’m tired or do I feel tired because the muscles in my eyelids are effected.

I still have no idea how much of this is related to the way I feel now, but I think some of this is more than coincidence.

I and an EMG (Electro Myography) this week. It looks like all of my nerves are working OK. I see Doc in June to get the results . . . until then . . .